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PRESS RELEASE: Guardians Sue Maryland Seeking Limits on and Oversight of the Use of Powerful Psychotropic Medications for Children in Foster Care

January 17, 2023

MEDIA CONTACT

Megan Berger, Disability Rights Maryland, megan.berger@disabilityrightsmd.org
Meredith Curtis Goode, ACLU of Maryland, curtis@aclu-md.org
Camilla Jenkins, Children’s Rights, cjenkins@childrensrights.org


BALTIMORE, MD – Today, Disability Rights Maryland, the ACLU of Maryland, Children’s Rights, and Morgan, Lewis & Bockius LLP filed a lawsuit against the Maryland Department of Human Services (DHS) and Social Services Administration (SSA) on behalf of minor children in the State’s foster care system who are given one or more psychotropic medications. The lawsuit covers all jurisdictions except Baltimore City, which is covered through separate ongoing litigation involving children in foster care.

The lawsuit claims that for over a decade Maryland’s DHS and SSA have failed to exercise adequate oversight of children in foster care who are given potentially dangerous psychotropic drugs.

As many as 34% of children in Maryland’s foster care system are given psychotropic drugs, and more than half of those children are prescribed multiple drugs at the same time. Nearly 75% of these children who are taking psychotropic drugs do not have a psychiatric diagnosis. Black children, disproportionately represented in Maryland’s foster care system, are at greater risk of being subjected to dangerous prescribing practices in many counties.

The complaint outlines dangerous failures on the part of SSA and DHS to serve as effective custodians for the children in their care, including failing to compile and maintain adequate medical and mental health records, failing to implement an adequate informed consent process, and failing to operate an adequate secondary review system to conduct second opinion evaluations when necessary.

Up to 80% of U.S. children who enter state foster care systems have significant mental health needs, including the effects of trauma caused by having been taken from their families and loved ones. The uncertainties and instabilities associated with life in foster care often add to that trauma, leading children to display complex behaviors that require the attention of mental health professionals. Frequently psychotropic medications are administered, which can be of help to children, but only when sufficient oversight mechanisms are in place.

Psychotropic medications are powerful drugs that directly affect the chemicals in the brain that help to regulate emotions and behavior. Children face a great risk of harmful side effects including seizures, suicidal thinking and behavior, weight gain, excessive fatigue and chronic diseases such as diabetes. The likelihood of adverse effects of medication increases with the number of medications, and these side effects can be lifelong, continuing even after the medication is stopped.

The risks of harm from psychotropic medications are increased for children in government systems because they do not have a consistent interested party to coordinate their treatment. The fact that multiple people are involved in their care can result in poor recordkeeping and miscommunication leading to children being prescribed too many drugs, at too high a dosage, at too young an age. Children pay the price, which is unacceptable.

Y.A., a sixteen-year-old Black child who has been in the custody of Maryland’s DHS for over two years, is one of the named plaintiffs in the case. He has repeatedly cycled between hospitalizations and temporary motel stays, and today remains separated from his mother and confined to a residential treatment facility. Y.A. overdosed twice on his medications while living in the motel. He has suffered severe side-effects, including extreme weight gain, difficulty controlling his hands and arms, difficulty walking, dizziness, fatigue, stomach aches, and head-aches, all of which are known symptoms of one or more of the multiple psychotropic medications he is taking. Neither Y.A. nor his mother has been given adequate information about his medications, and no adult with authority to consent to his medications regularly attends Y.A.’s psychiatric appointments with him. He believes that DHS “doesn’t pay attention” to him.

“Now is the time for our state to address these systemic deficiencies and provide proper care for the children they promised to protect. With a new administration in Annapolis, a critical window has opened for Maryland to address past failures and meet its responsibility to support children in state custody. The children of Maryland deserve nothing less,” said Megan Berger, assistant managing attorney at Disability Rights Maryland.

“The lack of comprehensive recordkeeping for all children is exacerbated by the state’s failure to enforce a clear and unambiguous informed consent policy. Medications are approved without benefit of a child’s health history, leading to potentially life-threatening complications,” said Samantha Bartosz, deputy director of litigation at Children’s Rights. “Biological parents are often not engaged, and may not even be aware that their child is taking psychotropic drugs. Youth, too, have no voice in consequential health decisions impacting them. Instead they are forced to take medications against their will.”

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About Disability Rights Maryland

Disability Rights Maryland, Inc. (DRM), a non-profit organization, is Maryland’s designated Protection & Advocacy Agency federally authorized to advance and protect the civil rights of individuals with disabilities, including children and youth with mental health, developmental, and other disabilities. DRM works with people with disabilities to achieve full participation in community life, self-determination, equality, freedom from abuse and neglect, and access to civil rights. For more information, please visit www.disabilityrightsmd.org.

About the ACLU of Maryland

Founded in 1931, the ACLU of Maryland exists to empower Marylanders to exercise their rights so that the law values and uplifts their humanity. Our vision is for Maryland’s people to be united in affirming and exercising their rights in order to address inequities and fulfill the country’s unrealized promise of justice and freedom for all. www.aclu-md.org

About Children’s Rights

Every day, children are harmed in America’s child welfare, juvenile justice, education, and healthcare systems. Through relentless strategic advocacy and legal action, we hold governments accountable for keeping kids safe and healthy. Children’s Rights, a national non-profit organization, has made a lasting impact for hundreds of thousands of vulnerable children. For more information, please visit www.childrensrights.org.

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Maryland Election Day November 8!

The upcoming general election for the State of Maryland is November 8, 2022!

Polling places will be open from 7am to 8pm and are required to provide reasonable accommodations to voters with disabilities. You can find DRM’s Voter Rights and Voting Action Plan on our website.

 

Election Protection Hotlines are open before and during election day:

ENGLISH 866-OUR-VOTE 866-687-8683

SPANISH/ENGLISH 888-VE-Y-VOTA 888-839-8682

ASIAN LANGUAGES/ENGLISH 888-API-VOTE 888-274-8683

ARABIC/ENGLISH 844-YALLA-US 844-925-5287

 

DRM wants to hear from you if your polling site was accessible, if election judges provided accommodations, if you had any problems with the voting machines, or anything else on your mind. Email your comments to Voting@DisabilityRightsMD.org or call us at 443-692-2492.

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Maryland’s Eviction Crisis is an Affordable Housing Crisis

Disability Rights Activists holding yellow signs that say Housing is a "Human Right" and a green sign that says, "Fair Housing is a Civil Right."
Disability Rights Activists holding yellow signs that say Housing is a “Human Right” and a green sign that says, “Fair Housing is a Civil Right.”

In Maryland, more than half of all people with disabilities had annual household incomes below $15,000 in 2016. While many people with disabilities receive monthly Supplemental Security Income (SSI) benefits, SSI payments alone are usually not enough to afford market-rate housing: in 2020, the average monthly rent of a one-bedroom apartment in Maryland was $1,223, while monthly SSI payments were just $783.

Maryland’s eviction crisis is an affordable housing crisis.

If you are experiencing routine eviction filings by your landlord and cannot pay rent timely because of when your benefits arrive, you may have the right to a reasonable accommodation for an extended grace period to pay your rent.

Read more from The Baltimore Banner, “Filing for evictions is cheap and easy in Maryland. Tenants suffer.”

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DRM Celebrates #ADA32

Red, white, and blue graphic that says, A D A 32. 1990 to 2022. Americans with Disabilities Act. Celebrate the ADA. July 26, 2022.
Today we celebrate the 32nd anniversary of the Americans with Disabilities Act (ADA). On this historic day, DRM honors thousands of individuals and their families who refused to accept major barriers that prevented individuals with disabilities of all ages, races and backgrounds from participating in community life. Their determined efforts combined with the staunch, persistent support of legislators and numerous other allies made this landmark legislation possible.

Learn about the history of the disability rights movement from internationally renowned disability rights activist Judy Heumann.

Image Credit: ADA National Network (adata.org) 1-800-949-4232.

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MobilityLink: Share Your Story

DRM has continued its campaign to educate the public, including legislators, to put pressure on the state’s paratransit provider to respond to rider complaints. Paratransit is a shared-ride public transit service for individuals with disabilities who have difficulty riding fixed-route public transit. The service is an important piece of protecting the right of people with disabilities to have equal and meaningful participation in their communities.

In our state, the Maryland Transit Administration (MTA) oversees MobilityLink paratransit service. MobilityLink riders use the service to get to work or class, as well as medical appointments, religious worship, and visits with loved ones. Sadly, MobilityLink has failed its riders, who commonly report serious issues with the service, including:

  • Late or missed rides, leading to riders being left alone, waiting for hours, often in the cold or heat, or in the dark (see Floyd and Gwen’s stories);
  • Long onboard travel times causing riders to miss important activities (see Brandon and Troy’s stories);
  • No access to backup vehicles and a triage system when riders are left stranded (see Tierra and Keyonna’s stories);
  • Difficulty finding out the status and location of rides;
  • Vehicles in disrepair, as well as being dispatched without straps to ensure safe transport for riders who use wheelchairs; and
  • Staff shortages causing poor service.

If you are interested in sharing your story with your Maryland elected officials, local council people, and MTA officials, please see the below sample letter, which includes space to include your own story or words. The following links will help you share your story:

Thank you for taking the time to inform and educate the public about the current state of MobilityLink and issues impacting people with disabilities!

 


Dear Elected Official:

I would like to tell you about the Maryland Transit Administration’s (MTA) paratransit, MobilityLink, a very important service meant to provide transportation to people with disabilities who have difficulty using other types of transportation, like the bus, light rail, and metro. As you may know, Maryland’s MobilityLink service underperforms compared to the other types of public transportation services being run by the MTA. This failure endangers the health and safety of riders and violates the Americans with Disabilities Act.

Marylanders with disabilities who use MobilityLink live busy lives—they have things to do, and places to be. MobilityLink is the only means of transportation for many riders, who often lack access to their own vehicle. Without reliable transportation, Marylanders with disabilities cannot  travel to work, attend class, receive medical care, visit loved ones, and participate in religious worship. MobilityLink should protect the right of people with disabilities to participate equally in their communities, but the service has failed to do so.

Poor MobilityLink service really hurts riders. Whether day or night, rain or shine, riders are left stranded because their ride is late or not coming at all. Riders traveling for medical services miss care, contributing to negative health outcomes. Disturbingly, the MTA has no back up service in place to locate and assist stranded MobilityLink riders. Since MobilityLink service is so unreliable,  many riders report a fear of leaving home, only traveling when absolutely necessary.

[Please use this space if you would like to add your own thoughts or personal story.]

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