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Rebecca Cokley to Receive Judith Heumann Champion of Justice Award

Photo of Rebecca Cokley. White woman with red hair wearing a navy blazer and white tank top, standing in front of a brick wall.

Disability Rights Maryland (DRM) is excited to announce that Rebecca Cokley will receive the prestigious Judith Heumann Champion of Justice Award at DRM’s Breaking Barriers Awards Gala on September 20, 2023 at the American Visionary Art Museum in Baltimore, Maryland.

The award, established in 2020, recognizes Judith Heumann’s remarkable lifelong achievements and her legacy as one of the world’s most influential disability rights activists. DRM presents this award to exceptional individuals who have dedicated their lives to advocating for disability rights and other intersecting civil rights movements.

Rebecca Cokley, a second-generation little person and three-time presidential appointee, has championed inclusive policies and challenged systemic barriers within the federal government, non-profit, and private sectors throughout her distinguished career. This esteemed award recognizes her contributions to the disability rights movement and her relentless pursuit of equity and inclusion.

Similar to Judith, Rebecca is an innovator who pushes boundaries and follows her vision. Her accomplishments include coordinating the first-ever White House Black History Month event for disability communities and initiating the first LGBTQIA+/Disability Pride Month event. She co-founded the Disability Justice Initiative (DJI), which is the first disability policy shop in a progressive think tank at the Center for American Progress.

In 2021, Rebecca joined the Ford Foundation as a program officer for their first-ever U.S. Disability Rights program. The program focuses on strengthening the disability field, cultivating diverse leadership, advancing economic security for people with disabilities, integrating disability rights into social justice movements, promoting disability pride and mobilizing resources for disability rights work.

Rebecca embodies and continues to champion the values and spirit that Judith Heumann infused into the disability rights movement.

To learn more about DRM’s Breaking Barriers Awards Gala, visit DisabilityRightsMD.org/Breaking-Barriers-Gala.

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About Rebecca Cokley:

Prior to joining the Ford Foundation, Rebecca was the cofounder and director of the Disability Justice initiative at the Center for American Progress, where she built out a progressive policy platform that protected the rights and services disabled people depend on for survival and also developed innovative solutions like a proposed disabled worker tax credit and increased access to capital for disability-owned small businesses. She also stewarded a campaign that resulted in an unprecedented 12 presidential candidates developing disability policy platforms.

Prior to her work at American Progress, she served as the executive director for the National Council on Disability, where she worked on sexual violence on college campuses, policing reform, and the civil rights of disabled parents. A three-time presidential appointee, Rebecca served in key policy roles at the Department of Education and the Department of Health and Human Services, as well as oversaw diversity and inclusion efforts for the Obama administration.

Rebecca is a frequent speaker and contributor on issues of public policy and disability inclusion in the media and at major national conferences. She has a bachelor’s degree in politics from the University of California, Santa Cruz.

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Expanded Services for Adults with Brain Injury

The Maryland Department of Health (MDH) has temporarily expanded the technical eligibility for the Home and Community-Based Services Waiver for Adults with Brain Injury (Brain Injury Waiver), which provides residential, day, supported-employment, and individual-support services to adults with neurobehavioral, cognitive, and physical deficits resulting from a brain injury. The Brain Injury Waiver typically only allows transition from just a handful of nursing facilities, but applicants may now transition from all private nursing facilities. The MDH is currently evaluating the sustainability of this expansion, which will remain in effect until November 2023.

 

Under the temporary expansion, Marylanders residing in Maryland nursing facilities, chronic hospitals, or state owned and operated facilities may be eligible for this program if:

  • They are between the ages of 22-64;
  • They have sustained an acquired brain injury that occurred after the age of 17;
  • The brain injury resulted in a cognitive, physical, behavioral, or emotional disability;
  • The individual’s income does not exceed $2,742 per month nor has assets that exceed $2,000 in value;
  • Their needs meet a nursing facility or chronic hospital level of care; and
  • Their medical issues are chronic, predictable, stable, and routine.

 

If you or someone you know is in a private nursing facility, is interested in living in the community with services via the Brain Injury Waiver and meets the above criteria, complete this interest form as soon as possible before the temporary expansion period ends in November 2023.  The form will connect you with staff from the Brain Injury Association of Maryland, who can assist with determining Waiver eligibility and the application process. The process can take a while, so the sooner you complete the interest form, the better.

 

More information is available at https://www.biamd.org/brain-injury-wavier-program.html

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What Are Your Transportation Priorities?

Black man looking at camera smiling while sitting in driver seat of a public bus.

The Maryland Department of Transportation (MDOT) launched a public survey to gather input for the 2050 Maryland Transit Plan. Access to transportation (or lack thereof) directly impacts employment, health and overall quality of life. The MDOT Transit Plan will be a 20-year vision for statewide transportation and will direct the state’s efforts moving forward.  Your input will help shape our transit system for the next few decades. The survey is available online in a digital format or it can be downloaded and emailed.

Complete the survey by Friday, May 5, 2023 at 5:00PM:  https://www.mdot.maryland.gov/tso/pages/Index.aspx?PageId=22


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Wiley Secures Victory for Disability Rights Maryland in Pro Bono Lawsuit Against Prince George’s County Public Schools

Washington, DC – Wiley Rein LLP secured an important victory on behalf of Disability Rights Maryland (DRM) in a lawsuit against Prince George’s County Public Schools (PGCPS), stemming from allegations that the school system disproportionately subjected students with disabilities to inappropriate and exclusionary forms of discipline.

In a March 24 decision granting DRM’s motion for summary judgment, the U.S. District Court for the District of Maryland ordered PGCPS to provide DRM with contact information for the parents or guardians of students who are eligible for special education in the school district, and who have received a suspension of more than three days or were expelled since January 2019.

Wiley Pro Bono Partner Theodore A. Howard represents Disability Rights Maryland in this case in collaboration with Luciene Parsley and Megan Berger of DRM’s legal staff. DRM is a nonprofit organization designated as the State of Maryland’s Protection & Advocacy agency. DRM is “federally mandated to advance the civil rights of people with disabilities,” and provides free legal services to individuals in Maryland with all types of disabilities who live in facilities or the wider community, or who are homeless.

DRM’s unsuccessful requests for parent or guardian contact information came after it received over 85 complaints against PGCPS related to exclusionary discipline and educational neglect of students with disabilities. As noted in the court’s ruling, DRM investigated many of the complaints and concluded that “PGCPS frequently violated the educational rights of students with disabilities.” 

When PGCPS refused to voluntarily provide the contact information DRM sought, Wiley filed an action for declaratory and injunctive relief on DRM’s behalf in November 2021 under the applicable federal protection and advocacy statutes and regulations.

The court agreed with Wiley’s argument that DRM is entitled to production by the school system of the information it has requested as a matter of law, and firmly rejected the various arguments interposed by the school system to prevent that outcome.

Originally posted March 28, 2023 by Wiley Rein LLP

 

About Wiley Rein LLP

Founded in 1983, Wiley is a dominant presence in the nation’s capital. With more than 240 attorneys and advisors, the firm has earned international prominence by representing clients in complex, high-stakes regulatory, litigation, and transactional matters. Many of Wiley’s lawyers and public policy advisors have held high-level positions in the White House and federal agencies and on Capitol Hill. The firm represents a wide range of clients – from Fortune 500 corporations to trade associations to individuals – in virtually all industries. Wiley provides significant pro bono legal services and charitable contributions to the local community every year.

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PRESS RELEASE: Guardians Sue Maryland Seeking Limits on and Oversight of the Use of Powerful Psychotropic Medications for Children in Foster Care

January 17, 2023

MEDIA CONTACT

Megan Berger, Disability Rights Maryland, megan.berger@disabilityrightsmd.org
Meredith Curtis Goode, ACLU of Maryland, curtis@aclu-md.org
Camilla Jenkins, Children’s Rights, cjenkins@childrensrights.org


BALTIMORE, MD – Today, Disability Rights Maryland, the ACLU of Maryland, Children’s Rights, and Morgan, Lewis & Bockius LLP filed a lawsuit against the Maryland Department of Human Services (DHS) and Social Services Administration (SSA) on behalf of minor children in the State’s foster care system who are given one or more psychotropic medications. The lawsuit covers all jurisdictions except Baltimore City, which is covered through separate ongoing litigation involving children in foster care.

The lawsuit claims that for over a decade Maryland’s DHS and SSA have failed to exercise adequate oversight of children in foster care who are given potentially dangerous psychotropic drugs.

As many as 34% of children in Maryland’s foster care system are given psychotropic drugs, and more than half of those children are prescribed multiple drugs at the same time. Nearly 75% of these children who are taking psychotropic drugs do not have a psychiatric diagnosis. Black children, disproportionately represented in Maryland’s foster care system, are at greater risk of being subjected to dangerous prescribing practices in many counties.

The complaint outlines dangerous failures on the part of SSA and DHS to serve as effective custodians for the children in their care, including failing to compile and maintain adequate medical and mental health records, failing to implement an adequate informed consent process, and failing to operate an adequate secondary review system to conduct second opinion evaluations when necessary.

Up to 80% of U.S. children who enter state foster care systems have significant mental health needs, including the effects of trauma caused by having been taken from their families and loved ones. The uncertainties and instabilities associated with life in foster care often add to that trauma, leading children to display complex behaviors that require the attention of mental health professionals. Frequently psychotropic medications are administered, which can be of help to children, but only when sufficient oversight mechanisms are in place.

Psychotropic medications are powerful drugs that directly affect the chemicals in the brain that help to regulate emotions and behavior. Children face a great risk of harmful side effects including seizures, suicidal thinking and behavior, weight gain, excessive fatigue and chronic diseases such as diabetes. The likelihood of adverse effects of medication increases with the number of medications, and these side effects can be lifelong, continuing even after the medication is stopped.

The risks of harm from psychotropic medications are increased for children in government systems because they do not have a consistent interested party to coordinate their treatment. The fact that multiple people are involved in their care can result in poor recordkeeping and miscommunication leading to children being prescribed too many drugs, at too high a dosage, at too young an age. Children pay the price, which is unacceptable.

Y.A., a sixteen-year-old Black child who has been in the custody of Maryland’s DHS for over two years, is one of the named plaintiffs in the case. He has repeatedly cycled between hospitalizations and temporary motel stays, and today remains separated from his mother and confined to a residential treatment facility. Y.A. overdosed twice on his medications while living in the motel. He has suffered severe side-effects, including extreme weight gain, difficulty controlling his hands and arms, difficulty walking, dizziness, fatigue, stomach aches, and head-aches, all of which are known symptoms of one or more of the multiple psychotropic medications he is taking. Neither Y.A. nor his mother has been given adequate information about his medications, and no adult with authority to consent to his medications regularly attends Y.A.’s psychiatric appointments with him. He believes that DHS “doesn’t pay attention” to him.

“Now is the time for our state to address these systemic deficiencies and provide proper care for the children they promised to protect. With a new administration in Annapolis, a critical window has opened for Maryland to address past failures and meet its responsibility to support children in state custody. The children of Maryland deserve nothing less,” said Megan Berger, assistant managing attorney at Disability Rights Maryland.

“The lack of comprehensive recordkeeping for all children is exacerbated by the state’s failure to enforce a clear and unambiguous informed consent policy. Medications are approved without benefit of a child’s health history, leading to potentially life-threatening complications,” said Samantha Bartosz, deputy director of litigation at Children’s Rights. “Biological parents are often not engaged, and may not even be aware that their child is taking psychotropic drugs. Youth, too, have no voice in consequential health decisions impacting them. Instead they are forced to take medications against their will.”

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About Disability Rights Maryland

Disability Rights Maryland, Inc. (DRM), a non-profit organization, is Maryland’s designated Protection & Advocacy Agency federally authorized to advance and protect the civil rights of individuals with disabilities, including children and youth with mental health, developmental, and other disabilities. DRM works with people with disabilities to achieve full participation in community life, self-determination, equality, freedom from abuse and neglect, and access to civil rights. For more information, please visit www.disabilityrightsmd.org.

About the ACLU of Maryland

Founded in 1931, the ACLU of Maryland exists to empower Marylanders to exercise their rights so that the law values and uplifts their humanity. Our vision is for Maryland’s people to be united in affirming and exercising their rights in order to address inequities and fulfill the country’s unrealized promise of justice and freedom for all. www.aclu-md.org

About Children’s Rights

Every day, children are harmed in America’s child welfare, juvenile justice, education, and healthcare systems. Through relentless strategic advocacy and legal action, we hold governments accountable for keeping kids safe and healthy. Children’s Rights, a national non-profit organization, has made a lasting impact for hundreds of thousands of vulnerable children. For more information, please visit www.childrensrights.org.

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