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2024 Legislative Session Highlights

Graphic says 23 oral testimonies, 33 letter sign ons, 71 written testimonies, 91 total bills advocated for or against

The legislative session was full of successes and challenges. DRM worked with partner organizations, individual allies and legislators to advocate for bills that advance disability rights and against bills that exclude people with disabilities in Maryland. This year, DRM took a position on a total of 91 bills. We submitted 71 written testimonies, orally testified on the impact of 23 bills and joined other organizations in signing 33 letters of support or opposition. Below are the highlights from this year’s session.  

MOBILITYLINK PARATRANSIT SERVICE IMPROVEMENTS STUDY (SB0891/HB1199)

This study establishes an objective review of the Maryland Transportation Administration’s MobilityLink. The Maryland Transportation Institute (MTI), an independent third party, will conduct the study to determine the best methods to deliver MobilityLink service.  MTI will look holistically at MobilityLink—including its service delivery model, customer service, reliability, performance, and workforce—and compare it with other paratransit providers nationwide. MTI will provide policymakers with concrete recommendations to improve service for Marylanders with disabilities. “MobilityLink riders rely on the service to access their community and unfortunately often experience poor service – like late pick-ups and drop-offs, long trips, and lengthy hold times for customer service calls. DRM is hopeful that MTI’s tangible recommendations will propel Maryland to enact sweeping paratransit reform to give Marylanders with disabilities the safe and reliable public transportation they deserve.” says DRM attorney, Daria Pugh.

NEW UNIT TO PROTECT PEOPLE IN STATE CORRECTIONAL FACILITIES (SB0134/HB0297)

“DRM’s investigations and monitoring of Maryland prisons over a number of years has demonstrated that people with disabilities are often subject to dangerous, violent, and unhealthy conditions.  The General Assembly’s creation of an independent, impartial correctional ombudsman for Maryland is a hopeful step forward .” says DRM’s Litigation Counsel, Luciene Parsley.  After 2 years of advocacy, Maryland will establish the Correctional Ombudsman Unit to investigate complaints and issue findings and recommendations. Increased oversight, transparency and accountability is important to address systemic issues and rights violations in Maryland’s correctional facilities. Additionally, the new unit provides a way to address rights violations that fall within the gaps of current complaint issue areas, like complaints against contractors who provide medical and mental health services for the Department of Public Safety and Correctional Services (DPSCS). The unit will report annually to the General Assembly, including information about systemic issues, rights violations and how DPSCS responds to the Ombudsman’s recommendations.

FUND FOR FAMILIES TO ACCESS SPECIAL EDUCATION ATTORNEYS, ADVOCATES AND CONSULTANTS (SB0797/HB0903)

This bill establishes a program to help families with limited financial resources access lawyers, advocates and education consultants for a variety of special education matters. Currently, DRM maintains a pro bono referral program for families with very limited means, but this will enable a broader range of families to access attorneys and, for the first time, to obtain services from advocates or consultants at no cost to them. The attorneys, advocates and consultants will be paid through the program, which will be administered by the Maryland Volunteer Lawyers Service (MVLS). DRM attorney Leslie Seid Margolis and the Education Advocacy Coalition crafted the bill that will soon help thousands of Maryland students. “I look at all the education intakes that come in and it’s hard to put into words what it feels like to turn families away, knowing how limited their options have been; this program will be so helpful in expanding the resources available to families.” This is important because families who have advocacy assistance are better equipped to secure appropriate services for their children and resolve education issues. The passing of this legislation brings us closer to ensuring all students have what they need to be successful in school.

Last year, Maryland passed a law that lets families get money back for expert costs in addition to attorneys’ fees if they win a case against a school system. This new program is different because it enables families to access legal support at all stages of the special education process, not just when they are facing a due process hearing; the program emphasizes assistance for families for Individualized Education Program (IEP) meetings and informal dispute resolution.

SELF-DIRECTED MENTAL HEALTH SERVICES PILOT PROGRAM (SB0988)

DRM introduced a bill that would create a self-directed mental health care pilot program for people with disabilities. Bills such as this one often take several years to pass, and DRM will continue to advocate for this program next year. Studies show that when people can manage their own care, they do better in their communities and are less likely to live in institutions. Most importantly, many people with disabilities prefer this kind of care. Right now, some people with serious needs must settle for inadequate help, join programs that might not fit them well, or go without help entirely. This new program would allow people to make a plan that fits their needs instead of making their needs fit into the current service system. Self-directed mental health care is already working in 6 states and is a good step toward fair treatment for mental health issues.

ASSISTED OUTPATIENT TREATMENT (SB0453/HB0576)

DRM opposed the expansion of involuntary civil commitment laws, including the creation of an Involuntary Outpatient Civil Commitment program, termed “Assisted Outpatient Treatment” (AOT). AOT had strong support from the current administration and passed in both the House and Senate. Testimony in favor of AOT revealed many fears and stereotypes about people with mental health disabilities’ capacity to make decisions about their minds and bodies. DRM believes people with mental health disabilities should be provided with any accommodations and supports necessary to make and communicate health care decisions, and that individuals have the right to receive care in the most integrated setting available. AOT meets none of these criteria. DRM is concerned that AOT risks jeopardizing efforts to create an innovative, behavioral health system in Maryland – one that is truly focused on supporting the voices and choices of people with mental health disabilities to receive the support they need to be included in our communities.

 

Thank you!

DRM would like to thank our donors whose support enabled us to advocate for people with disabilities throughout the 2024 legislative session.

If you are passionate about creating a more equitable Maryland and able to give, please consider making a generous contribution to support our work. We rely exclusively on gifts from individuals and general operating grants to support this work.

SUPPORT DRM TODAY!

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Why Legislative Advocacy is Important

Banner reads: Chrys is one of the first people benefitting from the Trans Health Equity Act. There is a photo of Chrys who is a young person with short purple/ blue hair and a black and white button down collared shirt.

The laws and policies enacted each year during the Maryland legislative session heavily impact our daily lives. Last year, DRM and Chrys, as members of the Trans Rights Advocacy Coalition, successfully advocated for the passing of the Trans Health Equity Act, a law requiring Medicaid to cover gender affirming care.

Chrys is one of the first people benefitting from the new law. We sat down with Chrys to hear what motivated them to advocate for the bill and how their life has changed since it passed. Here is their story.

Chrys is a college student with a passion for the humanities. They’ve always been deeply interested in understanding why people think and act the way they do. A non-binary, gender-fluid person, Chrys is heavily involved in legislative advocacy around trans rights and community building, such as hosting picnics for trans people in the Baltimore area.

Before sharing with their older brother, “I think I might be trans”, Chrys was closeted and people assumed they were a man. In their mid-twenties they found themself increasingly questioning their gender. Chrys thought, “Maybe it’s not normal that I hate all of these things about myself that define what a man is supposed to be.”

Days when their ADHD doesn’t allow them to shave, they are misgendered and often met with discrimination and harassment. “There’s a big disconnect between who I see in the mirror and who I want to be. It’s very jarring especially because I still need to shave every day.” Experiencing gender dysphoria is a barrier to enjoying life to the fullest and connecting with those around us. This is one reason why many transgender people need gender affirming healthcare.

To align their physical appearance with their true identity, Chrys needed gender affirming care, but it was not all covered through their Medicaid insurance at the time. They used loans and savings to pay roughly $3,000 for partial treatment.

Without gender affirming care, trans people are at a higher risk for anxiety, depression, suicide and violence. In a national survey on LGBTQ youth mental health, 54 percent of young people who identified as transgender or nonbinary reported having seriously considered suicide in the last year, and 29 percent had tried to end their lives (Gender Affirming Care, 2020). Many studies have shown that gender affirming care reduces these risks (Mental Health Outcomes, 2022).

To fight for equitable access to gender affirming care, Chrys joined the Trans Rights Advocacy Coalition, a group of advocates including DRM attorney, Sam Williamson. Chrys, alongside other members of the coalition, created one of the most comprehensive reviews of Medicaid policies on trans services across the United States. This research formed the backbone of the campaign for the Trans Health Equity Act.  From coalition meetings, press conferences, testimonies, bill drafting, lobbying, and more, the Trans Rights Advocacy Coalition led the campaign for the passage of the Trans Health Equity Act in 2023. In January 2024, Governor Moore signed it into Maryland law.

Chrys is one of the first people benefiting from the Trans Health Equity Act. They will get facial feminization surgery and more hair removal newly covered by their Medicaid insurance. Chrys is relieved they won’t have to take out more loans. They are hopeful that after the procedures people won’t call them a man, discriminate against them, nor harass them for wearing a dress while having chin stubble. They look forward to waking up and smiling in the mirror and eagerly taking photos with friends.

Chrys’ story highlights why legislative advocacy is important in creating a more equitable Maryland for all.

DRM can only continue this work with your support. Give today!

 

 

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Assistive Technology Awareness Month

November is Assistive Technology Awareness Month, a time to celebrate how technology positively impacts the lives of people with disabilities.

What is Assistive Technology?

Assistive technology is any tool or system that helps people with disabilities do things, be more independent, and improve their overall quality of life.

Here are some examples:

· Wheelchairs and Mobility Aids: These help people move around on their own.

· Communication Aids: Tools that assist people with communication difficulties.

· Hearing Aids and Cochlear Implants: Improve or restore hearing.

· Screen Readers and Voice Recognition Software: Help those with visual or motor disabilities use computers.

· Adaptive Keyboards and Mouse Devices: Make computer use easier for those with fine motor skill limitations.

· Prosthetic Limbs and Orthotic Devices: Support and enhance mobility.

· Smart Home Technology: Can be adapted to control the home environment.

· Sensory Aids: Help those with sensory impairments interact with their surroundings.

These examples show just a fraction of the diverse range of assistive technologies available. The goal of assistive technology is to remove barriers and provide equal access and opportunities for individuals with disabilities.

Any device that removes a barrier can be assistive technology!

 

Assistive Technology for Students with Disabilities

The Individuals with Disabilities Education Act (IDEA) is the main law for special education. The law states that the team who develops a student’s individualized education program (IEP) must consider their need for assistive technology devices and services. Assistive technology can help students in all parts of their education. This includes training for the student and their parents to support them.

 

How to Get Assistive Technology on a Limited Income

Outside of school, people can get assistive technology through Maryland Medicaid and home and community-based waiver programs, funded by Medicaid.

Maryland Medicaid is a lifeline for many individuals who need durable medical equipment, assistive technology, and/or home modifications to lead full, independent lives. To see what programs you might be eligible for, contact Maryland Access Point (MAP).

 

Try Assistive Technology for Free

There’s a free resource for trying assistive technology. The Maryland Technology Assistance Program (MDTAP) has a loan library. It lets people explore and test assistive technology before making a commitment. Visit the MDTAP website for more info.

 

Let’s ensure everyone has the tech they need to thrive!

Assistive technology is a necessity, not a luxury. This Assistive Technology Awareness Month, let’s appreciate programs like Maryland Medicaid and resources like MDTAP that enable individuals with disabilities to access Assistive Technology.

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Celebrating PAVA Programming

Man smiling and holing an 'I voted' Sticker

DRM’s PAVA program aims to ensure individuals with disabilities can fully participate in the electoral process.

What is the PAVA program?

The Protection & Advocacy for Voting Accessibility (PAVA) program was established in 2003 as part of the Help America Vote Act (HAVA), which was signed on October 29, 2002. HAVA provides funding for accessible voting systems. It guarantees the right to a private and independent vote for people with disabilities. Under the PAVA program, P&As have a mandate to help ensure that individuals with disabilities participate in the electoral process through voter education, training of poll officials, registration drives, and polling place accessibility surveys.

PAVA empowers DRM to:

  • Inform individuals with disabilities about their voting rights through events, institutions, and online platforms.
  • Facilitate voter registration and conduct training sessions.
  • Manage a dedicated voting hotline and email for receiving voter complaints and aiding in the investigation of obstacles faced by individuals with disabilities in exercising their voting rights.
  • Investigate circumstances that may hinder individuals with disabilities from voting.
  • Actively engage in and bolster coalitions dedicated to advancing voting rights.
  • Offer testimonies in favor of legislation supporting the voting rights of people with disabilities, and oppose bills that run counter to these rights.

Upcoming Elections in Maryland

In 2024, Marylanders will have an opportunity to vote in both a Primary Election on May 19, 2024 and General Election, November 5, 2024.

The deadline to register to vote in the Primary Election is April 23, 2024. The deadline to register to vote in the General Election is October 15, 2024.

Information about how to register, accessibility and more: Here

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Celebrating PADD Programming

Four girls posing after doing yoga

We are excited to celebrate the anniversary of the Protection and Advocacy for Individuals with Developmental Disabilities (PADD) Program. 

What is the PADD Program? 

Congress established the PADD program in 1975 as the first Protection and Advocacy (P&A) program to protect the human and civil rights of people with developmental disabilities. The PADD program was a part of Developmental Disabilities Assistance and Bill of Rights Act of 1975 in response to the horrific conditions that were exposed at Willowbrook State School. An investigation of Willowbrook, a New York state institution for people with intellectual disabilities, revealed widespread abuse and neglect and sparked a national movement to protect the rights of people with disabilities. 

How does PADD Impact the Community? 

The PADD program is designed to provide a safety net for people with developmental disabilities and to ensure they have access to the services and supports they need. This includes investigating allegations of abuse and neglect, advocating for the rights of people with developmental disabilities in legal and administrative proceedings, providing information and referral services, and educating the public about the rights of people with developmental disabilities. 

For example, DRM’s PADD program has helped draft and advocate for the End the Wait Act, which passed in 2022. Several of Maryland Medicaid’s home and community-based services programs have extensive waitlists, with some applicants waiting up to 10 years to access services. In 2021 there were 3,694 people on the waiting list for Developmental Disabilities Administration (DDA) services, 6,221 children with autism on the Autism Waiver Registry, and over 20,000 people on the Home and Community-Based Options Waiver waitlist (despite there being approximately 1,100 unused slots). The End the Wait Act requires the state to develop a plan to cut the Medicaid waitlists in half by fiscal year 2024. 

Additionally, DRM has assisted people with developmental disabilities by helping to shut down an unsafe public residential institution, abolishing the payment of subminimum wage to individuals with disabilities working in the state of Maryland, ensuring that people with intellectual and developmental disabilities have access to vaccines, and spearheading the passage of a Supported-Decision Making bill. 

Together with our partners – the Maryland Developmental Disabilities Council and the Maryland Center for Developmental Disabilities – DRM continues to work every day to create a more independent, inclusive and just society for people with developmental disabilities. 

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